About The Cerebral Palsy Research Registry
The Cerebral Palsy Research Registry is a multi-institutional collaborative effort whose primary mission is to improve our understanding of cerebral palsy. We believe that by working together, families and researchers can make a difference in the lives of people affected by cerebral palsy.
Representatives from Northwestern University Department of Physical Therapy and Human Movement Sciences, the Rehabilitation Institute of Chicago, and the University of Chicago have developed and expanded the CPRR with two goals in mind:
- Keep the Cerebral Palsy Research Registry as a secure database that can be used to connect interested families with researchers studying cerebral palsy. Participation in the CPRR does not directly enroll you into research studies.
- Use the Cerebral Palsy Research Registry as a tool to investigate surveillance data. Examples of this include the natural aging process of persons with cerebral palsy, current interventions, environmental modifications and services utilized by persons with cerebral palsy.
Initially enrolling children and adults with cerebral palsy in the Chicago land area, the Cerebral Palsy Research Registry has been expanded to accommodate national participant registration as well as collaboration with multiple institutions across the country.